I say it time and time again…Elijah takes the most out of me! It’s all worth it, I’d do ANYTHING for any of my boys.
OH let start with stating that I did get a break! Elijah went to an indoor water park resort for three days. Man was it quiet around here. I missed him, BUT I also enjoyed the peacefulness of the home.
Elijah can’t tolerate silence. I think his mind leads him to thinking he’s “alone”. He tends to make noise to comfort himself. That noise can be silly vocals, irritating a brother or banging on a wall. UGH!!!
Elijah lost a pair of his sunglasses while there. We always keep two pair. So far he’s been through four. Not too bad for having to wear them all the time for two plus years. He is very particular, he will only wear one kind. So I venture to the website that I buy them from and they are OUT OF STOCK! UGH! This was the cheapest site I was able to find, the glasses were only $50 here! He needs a spare pair though so I search some more.
I found a site that had them on clearance for $24.99 with two pair left in stock! I bought both pair! Great news-ah?!
I fear that “his glasses” are getting discontinued though! If this is true…do I have any volunteers that are willing to break the news to him. I don’t think it’ll be a very pleasant transition to a new style. Atleast he’ll have four pair of these now. I may have to continue looking for more clearance deals.
His therapy sessions have been going well. He has been in his own room for quit some time now. However, there is concern with how often the TV is on. He goes to sleep with it on. Between Andrew and I we shut it off through out the night. It’s a guarantee that when I wake him up in the morning it will be on.
He uses the TV as his comfort from the silence and the darkness. His therapist is getting concerned with how often it is on, but we don’t see it going away for sometime.
Right now we are trying to get him to express his anger. Anger towards his father for what he did to him. He has every right to be angry. We are dealing with trust issue between Elijah and his therapist. Elijah confessed to me he doesn’t like telling him how he feels. He shares a lot with me and I will share it with the therapist. That works…to a point.
During therapy I really feel like Elijah just wants to burst into tears, but fights them too much. I’ve talked to him about this. I believe he doesn’t want his therapist to see him cry. I want him to cry, I want him to let it all out.
Yesterday he was just furious at his father. The therapist walked him through two “cool down” sessions. When we left Elijah confessed they really didn’t work. He stated, “I just want to hurt my dad, really bad. Like he has hurt me!”
I asked how giving his dad physical pain would help him with his internal pain. He says it would just make him feel good. I expressed that giving his dad a black eye wasn’t going to be the same. A black eye goes away on it’s own. Internal pain takes work, hard work. He said his dad deserves to feel what he is feeling.
I totally understand where he is coming from. I think Andrew could relate to his feelings as well. Andrew has stated to me more than once that he would love to beat the crap out of him. We truly are not violent people-HONESTLY! I think that the anger we all feel towards Elijah’s father has built up in us all that our bodies just get so tense thinking about him. The fists start to tighten and you just want to release it onto his face. I don’t see any of us actually doing it, but I have to admit it kinda is a nice thought.
Elijah was a total handful (to put it nicely) last night. I believe it was regression from the therapy session. He’s got anger built up and it’s starting to come out. Lord, help us all through this!
CCTV Update
I’ve been trucking along. Couldn’t even begin to tell you how many organizations I have called. Some can help, others can’t, some direct me to another organization.
NOTES NOTES NOTES, I have been eeping lots of them. I record every little detail, from names, to length of calls, you name I have it down.
Yesterday’s work lead me to an actual referral to an attorney. I will be waiting (impatiently) for his return call.
I’m also waiting for an independent living center to call me. Mom was confused on why this organization would help a 10 year old. She understood once I explained how the CCTV would be “independence” to Eli. Oh and the stress it would relieve from my shoulders! I told his VI teacher that if I had to go through another year without one I think I’m going to end up in the psych ward.
I get an email almost everyday from the resource specialist that is helping me. LOADS of information. She is truly a blessing through all this.
I really need to sit down and start typing out the appeal letter. h goodness, I need to get all proper with my grammar and all. Thank goodness I have the resource specialist willing to proof it and help me with adjustments. (You can all verify how “sloppy” I write!)
Went to a Visually Impaired Family Gathering here in town Tuesday night. It sponsored by Wisconsin School for the Blind and Visually Impaired Outreach program. It was held at our local Technical College. Sad news-they have to close their low vision center…EVERYTHING is going, equipment to employees. I want to get Elijah is to check all the equipment out once more before they are gone. June 15th is the end of this service here.
Our next gathering will be in late September. I am in charge of setting it up along with the director of the Outreach program. She lives in Janesville, so I will the local issues. I’m excited and hope it turns out great. One goal of mine will be to get the families and kids to interact more. We all sit with our families and there’s not too much interaction. I’d like a project for the little kids to do, a bigger kid group and then a parent discussion.
I’ve got sometime yet. BUT then again before you know it, it will be here!
I was also asked to look at being trained as a Parent-Educator Support person. I would get free training, held 5 times a year and a stipend to help with childcare. Problem being training is on the weekends.
I would be a resource person for other parents when it comes to the education of their visually impaired child(ren). I would team up with Elijah’s VI teachers. I’m very interested in doing it.
After mentioning it to my resource specialist, she thought I would also do great as a parent trainer for the organization that she works with. They are the ones that held the classes I was taking on being a parent advocate for children of special needs.
Here to it’s free training. Difference is you need speak and hold sessions like the ones I attended. I believe it’s actually a paid position too. I would also be very interested in this.
Oh my! What am I (possible) getting myself into? First things first though. I want to get the CCTV situation all straightened out. In other words…I want it in my home on Elijah’s desk. And then I want to make sure that Elijah is a a comfort level with therapy and dealing with his past.